Ліззі Веласкес - блогер і письменниця з дуже рідкісною хворобою

Блогер, письменниця і "оратор-мотиватор" американка Ліззі Веласкес - носій рідкісної хвороби, синдрому Видемана - Раутенштрауха. При зрості 152 сантиметри вага тіла Ліззі ніколи не перевищував 29 кілограмів. Крім того, вона сліпа на одне око.

У 2013 році Ліззі була названа "найпотворнішого жінкою в світі". У дитинстві над нею знущалися однолітки, а сьогодні вона мотивує інших і бере участь в дослідженнях Південно-західного медичного центру Техаського університету.

(Всього 25 фото + 2 відео)

The first thing @WWETheBigShow told me was "Big things come in tiny packages!" I had so much fun sharing the stage with him today and talking about anti-bullying.

Фото опубліковано Lizzie Velasquez (@littlelizziev)

THANK YOU !! 500K!!

Відео опубліковано Lizzie Velasquez (@littlelizziev)

Can not stop Will not stop! Successfully reached down for everything I had left and did one more really awesome shoot before a two week break!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

During my meet & greet this sweet girl came up to me and said she wants to start her own YouTube channel and wanted to one day record a video with me. I asked her mom if we could use her phone and we recorded her first video together! Moments like these are what makes my job so rewarding.

Фото опубліковано Lizzie Velasquez (@littlelizziev)

I think it's only appropriate to post this here! Felt like the best field trip ever!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Our first stop of the day was at the #Facebook headquarters. I did not want to leave !! Thanks everyone who participated in my Q & A earlier today. Can not wait to do it again sometime !! @abraveheartfilm

Фото опубліковано Lizzie Velasquez (@littlelizziev)

The smile on my face is not going away anytime soon. I can not express the excitement I have for what's in store very soon!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Hey Y'all! Ollie and I are loving our new SoundLink Mini speaker II from @Bose! I am so excited to be partnering with them - they are going to send one of you a speaker! Trust me, it's the best! BTW @BOSE is picking a random fan to receive a speaker this summer - do an IG post and use #SoundLinkSceneSweeps ?? NO PURCH NECESSARY. Starts 7/30/15, 11.59 PM PT & ends 8/30/15, 11:59 pm PT. Open to US & DC excluding RI including Canada except Quebec; 18+. Limit 1 entry / person. Entry / Rules: http: //bit.ly/1RzyJ4B Void where prohibited

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Hey Friends !! I'm SO EXCITED to share with you that I'm working with @Bose to share their new SoundLink Mini speaker II this summer! @BOSE is gonna pick one random fan to receive a speaker too, they're picking a person who uses #SoundLinkSceneSweeps in a IG post, easy enough right? NO PURCH NECESSARY. Starts 7/30/15, 11.59 PM PT & ends 8/30/15, 11:59 pm PT. Open to US & DC excluding RI including Canada except Quebec; 18+. Limit 1 entry / person. Entry / Rules: http: //bit.ly/1RzyJ4B Void where prohibited. "

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Tomorrow morning my sweet mom will be going back to the hospital for another surgery. Please send any and all prayers and positive thoughts our way. We have faith that she is in God's hands and will be well taken care of!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Two flights from Austin to Michigan, quick film makers party as soon as we landed, screening of @thewolfpackfilm, and then stopping by the @TCFF Anniversary party. It was a successful day!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

See you soon London!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Enjoying some rooftop views in the city ??

Фото опубліковано Lizzie Velasquez (@littlelizziev)

IN A THEATER NEAR YOU, VERY SOON !! Thank you so much to everyone who helped make this possible! This is OUR movie and we are so honored and excited to be on this journey together! Help us share this great news - and we'll give you more details as soon as we can !! #Cinedigm @abraveheartfilm

Фото опубліковано Lizzie Velasquez (@littlelizziev)

One of the many reasons why I love my family !! @abraveheartfilm

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Thx to @spratx & @Impermanent_Art for this @littlelizziev #ABraveHeartFilm mural! Come see it @ 2615 E 6th! #SXSW

Відео опубліковано Lizzie Velasquez (@littlelizziev)

Yep. This is happening and I'm in heaven!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

It feels good to be back ??

Фото опубліковано Lizzie Velasquez (@littlelizziev)

We made it safe and sound! I'm about to burst with excitement to do my first speaking event of 2015 tomorrow !! # caper15

Фото опубліковано Lizzie Velasquez (@littlelizziev)

First day of my second round of iron infusions today. Yes, I am going to be 26 next month and yes I brought my own blanket! #NotEngaged #IKnowSomeoneWillAsk

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Shopping at the mall 3 days until Christmas and we are still managing to laugh!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

What I wake up to every morning! BE BRAVE!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

And the hospital stay continues ...

Фото опубліковано Lizzie Velasquez (@littlelizziev)

I've spent the last two days with people who mean the absolute world to me. I can not seem to wipe the smile off my face and it's all because of the people who have been brought into my life that have helped me become the bravest I've ever been. Here we go !! @thelizzieproject

Фото опубліковано Lizzie Velasquez (@littlelizziev)

Be STRONG when you are weak. BRAVE when you are scared. And HUMBLE when you are victorious.

Фото опубліковано Lizzie Velasquez (@littlelizziev)

What time is it? FAN MAIL TIME!!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

My little lady was right by my side while I was doing some final edits for book 3, Choosing Happiness!

Фото опубліковано Lizzie Velasquez (@littlelizziev)

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